Beyond the Stethoscope welcomes special guests as we lead thought-provoking discussions. We invite you to review the schedule of upcoming episodes; if you have any questions following the podcast, please contact us.
Topic of Discussion: Advance Care Planning
Please join us for a special edition of Beyond the Stethoscope as we join Lynda Meeks and Rachel Lapensee for a conversation on Advance Care Planning.
ACP Resources:
https://nsmhpcn.ca/acp/
Disclaimer: The views and opinions expressed in this program are those of the speakers and do not necessarily reflect the views or positions of any entities they represent or the North Simcoe Muskoka Hospice Palliative Care Network.
Upcoming Podcasts
Each month our team will review a medical article(s) focused on the topic of the month.
| MONTH | TOPIC OF DISCUSSION |
| May | Chronic Diseases |
| June | Normalizing Talking About Death and Dying |
| July | Mental Health and Hospice Palliative Care |
| August | Access to Palliaitve Care for Vulnerable Populations |
| September | Grief and Bereavement |
| October | Maid |
| November | Palliative Care in the Community |
| December | Palliative Care in Indigenous Populations |
Historical Podcasts
March 2024: Palliative Care Conversations
Please join our host Lynda Meeks, along with Nancy Good-Kennedy, as they discuss the importance of having difficult conversations and finding hope, joy and gratitude in the face of fear.
The article referenced in the podcast:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6691601/
Nancy’s Key Things to Remember:
Set up – free from distraction, eye level, cell phones off
Permission – Is this ok?
Assess understanding – Are they aware of disease progression
Share – Prognosis, functional decline
– Wish, worry, wonder
Explore – Goals, fears, worries, trade-offs
Close – Summarize
Disclaimer: The views and opinions expressed in this program are those of the speakers and do not necessarily reflect the views or positions of any entities they represent or the North Simcoe Muskoka Hospice Palliative Care Network.
February 2024: Palliative Care in a Diverse World
Palliative Care in a Diverse World
Please join Lynda Meeks and Laura Bates, NSMHPCN Palliative Pain and Symptom Management Consultants with the Mentorship and Education Portfolio, along with Rachel Lapensee, NSMHPCN Clinical Nurse Manager, as they discuss hospice palliative care in a diverse word, focusing on increasing inclusivity of LGBTQIAP+ individuals in hospice palliative care.
Article Links:
References:
Bristowe, K., Hodson, M., Wee, B., Almack, K., Johnson, K., Daveson, B.A., Koffman, J., McEnhill, L., and Harding, R. (2018). Recommendations to reduce inequalities for LGBT people facing advanced illness: /ACCESSCare national qualitative interview study. Palliative Medicine, 32(1): 23-35. DOI: 10.1177/0269216317705102
Maingi, S., Bagabag, A.E., and O’Mahony, S. (2018). Current best practices for sexual and gender minorities in hospice and palliative care settings. Journal of Pain and Symptom Management, 55(5): 1420-1427. DOI: 10.1016/j.jpainsymman.2017.12.479
Rodrigues, T.S., Sant’Ana, R.S.E., Zerbinati, J.P., Souza, L.N., de Sousa, A.R., Maheu, C., and de Godoy, S. (2023). Approaching sexuality in LGBTQIAP + patients with cancer: scoping review. BMC Public Health, 23:1269-1281. DOI: 10.1186/s12889-023-16170-0
Stajduhar, K.I., Millison, A/, Giesbrecht, M., McNeil, R., Pauly, B., Reimer-Kirham, S., Dosani, N., Wallace, B., Meagher, C., Kvakic, K., Gleave, D., Teal, T., Rose, C., Showler, C. and Rounds, K. (2019). “Just too busy living in the moment and surviving”: barriers to accessing health care for structurally vulnerable populations at end-of-life. BM Palliative Care, 18:11-24. DOI: 10.1186/s12904-019-0396-7
Ussher, J.M., Allison, K., Power, R., Ryan, S., Perz, J., and The Out with Cancer Study Team. (2023). Disrupted identities, invisibility and precarious support: a mixed methods study of LGBTQI adolescents and young adults with cancer. 23:1837-1853. DOI: 10.1186/s1289-023-16739-9
Wilson, K., Kortes-Miller, K., and Stinchcombe, A. (2018). Staying out of the closet: LGBT older adults’ hopes and fears in considering end-of-life. Canadian Journal on Aging, 37(1): 22-31. DOI: 10.1017-S0714980817000514
Stangl, A.L., Earnshaw, V.A., Logie, C.H., van Brakel, W., Simbayi, L.C., Barré, I., and Dovidio, J.F. (2019). The health stigma and discrimination framework: a global, crosscutting framework to inform research, intervention development, and policy on health-related stigmas. BMC Medicine, 17:31-43. DOI: 10.1186-s12916-019-1271-3
Disclaimer: The views and opinions expressed in this program are those of the speakers and do not necessarily reflect the views or positions of any entities they represent or the North Simcoe Muskoka Hospice Palliative Care Network.
January 2024: Leadership in Palliative Care
Leadership in Palliative Care
Please join our host Lynda Meeks, NSMHPCN Education Facilitator, and Rachel Lapensee, NSMHPCN Clinical Nurse Manager, as they discuss leadership in Hospice Palliative Care.
Resources:
Exemplary Nursing Leadership is Central to Improving Care of the Dying
https://onlinelibrary.wiley.com/doi/pdf/10.1111/jonm.12353
The Leadership Challenge: https://www.amazon.ca/Leadership-Challenge-James-M-Kouzes/dp/0787984914
The Miracle Morning Movie: https://www.youtube.com/watch?v=pI8xsLp7hqg
Disclaimer: The views and opinions expressed in this program are those of the speakers and do not necessarily reflect the views or positions of any entities they represent or the North Simcoe Muskoka Hospice Palliative Care Network.
Disclaimer: The views and opinions expressed in this program are those of the speakers and do not necessarily reflect the views or positions of any entities they represent or the North Simcoe Muskoka Hospice Palliative Care Network.
December 2023: Palliative Care for Indigenous Populations
Please join our guest host Laura Bates, NSMHPCN Education Facilitator, and Kathlene Bartlett, NSMHPCN Palliative Pain and Symptom Management Consultant, Indigenous Portfolio Navigator, as they discuss Palliative Care for Indigenous Populations.
Disclaimer: The views and opinions expressed in this program are those of the speakers and do not necessarily reflect the views or positions of any entities they represent or the North Simcoe Muskoka Hospice Palliative Care Network.
November 2023: Palliative Care in the Community
Please join our guest Cathy McKeown, Palliative Pain and Symptom Management Consultant with NSMHPCN, and guest Thera Green, RPN, as they discuss Palliative Care in the community.
Disclaimer: The views and opinions expressed in this program are those of the speakers and do not necessarily reflect the views or positions of any entities they represent or the North Simcoe Muskoka Hospice Palliative Care Network.
October 2023: Medical Assistance in Dying (MAID)
Please join our host Lynda Meeks, NSMHPCN Education Facilitator, and our guest Julie Leighton-Phelps, Palliative Pain and Symptom Management Consultant, NSMHPCN, as they discuss MAID.
Organ Donation Information: https://www.giftoflife.on.ca/en/
September 2023: Service Animals in Hospice Palliative Care
Please join our host Laura Bates, NSMHPCN Education Facilitator, and our guest Louise Brazier, Hospice Orillia Bereavement Services Coordinator, as they discuss the role service animals have in Hospice Palliative Care and how the Hospice Orillia Facilities Dog Trooper has made a difference in their community.
Recommended article: https://www.ncdps.gov/blog/2019/10/01/warren-correctional-institution-dog-training-program-brings-pawsitive-impact-nc
August 2023: Access to Palliative Care for Vulnerable Populations
Please join our host Lynda Meeks, NSMHPCN Education Facilitator, and our guest Rachel Lapensee, NSMHPCN Clinical Nurse Manager, as they review the article Assessing the impact of a health navigator on improving access to care and addressing the social needs of palliative care patients experiencing homelessness: A service evaluation by Lilian Robinson, Leeann Trevors Babici, Alissa Tedesco, Donna Spaner, Trevor Morey and Naheed Dosani.
July 2023: Patient Preparedness for Death
Please join our host Lynda Meeks, NSMHPCN Education Facilitator, and our guest Sue Martin, NSMHPCN Palliative Pain and Symptom Management Consultant (PPSMC), as they discuss patient preparedness for Death.
Additional Recommended Reading:
- Sufficient Death Preparedness Correlates to Better Mental Health, Quality of Life, and EOL Care https://www.sciencedirect.com/science/article/abs/pii/S088539242200104X#preview-section-references
- Courses of Change in Good Emotional Preparedness for Death and Accurate Prognostic Awareness and Their Associations With Psychological Distress and Quality of Life in Terminally Ill Cancer Patients’ Last Year of Life – Free article
- Terminally Ill Cancer Patients’ Emotional Preparedness for Death Is Distinct From Their Accurate Prognostic Awareness – Article preview
- Defining a Good Death (Successful dying) – Free article
- Death Anxiety and Correlates in Cancer Patients Receiving Palliative Care – Abstract
- The therapeutic potential of psychedelic substances in hospice and palliative care – Free article
- The Potential of Psychedelics for End of Life and Palliative Care published in the current topics in behavioural neurosciences book series CTBN volume 56
- Psychotherapy at the End of Life
- Dr Marilyn Mednoza’s article What Impact Do End-of-Life Experiences Have on Grief? https://www.psychologytoday.com/us/blog/understanding-grief/202203/what-impact-do-end-life-experiences-have-grief full article
- Dr Christopher Kerr drchristopherkerr.com/research
June 2023: Normalizing Talking About Death and Dying
Please join our host Lynda Meeks, NSMHPCN Education Facilitator, and our guest Laura Bates, NSMHPCN Education Facilitator, as they discuss the article titled Young Adults Understanding and Readiness to Engage with Palliative Care written by Anita Mallon, Felicity Hassan, Karen Kassen, Paul Slater, and Sonya McIlfatrick.
May 2023: Palliative Approach for those with Kidney Disease
Join our guest host Nancy Good-Kennedy, NSMHPCN Hospice Palliative Nurse Consultant, as she speaks with Tim Madarasz on the role of a Spiritual Care Provider.
April 2023: The Importance of Volunteering in Hospice Palliative Care
Join our guests Louise Brazier, Stefanie Collins and Daniela Accomando as they walk us through a review of the article Volunteers in Palliative Care Make a Difference by Luijkx, K.G., & Schols, J.M.
Luijkx, K. G., & Schols, J. M. (2009). Volunteers in palliative care make a difference. Journal of palliative care, 25(1), 30–39.
March 2023: Advance Care Planning: An Interview with Dr. DiDiodato
Join our guest host Sherry Hubbert, NSMHPCN HPC Nurse Consultant, as she discusses the importance of Advanced Care Planning with Dr. Didiodato.
February 2023: Role of a Spiritual Care Provider: An Interview with Tiv Madarasz
Join our guest host Nancy Good-Kennedy, Hospice Palliative Nurse Consultant, as she speaks with Tim Madarasz on the role of a Spiritual Care Provider.
January 2023: Leadership in Palliative Care
Join our guest host Laura Bates, NSMHPCN Education Facilitator, as she interviews Lynda Meeks, NSMHPCN Education Facilitator on the topic of Leadership in Palliative Care. Within palliative care, leadership is the process of empowering clinical teams to transform the care of serious illness. Given the rapid growth of the palliative care field, interdisciplinary leadership has become essential (Dahlin et. al. 2018)
December 2022: Death Doula: Supporting Those in End of Life
Join our guest host Kathlene Bartlett, NSMHPCN Nurse Consultant, and her guest speaker, Cara Spearin, Death Doula, as they discuss the role of Death Doula.
November 2022: Managing Death in the Field: Prehospital End-of-Life Care
Join our host Lynda Meeks, NSMHPCN Education Facilitator, and her guest speaker, Cathy McKeown, Hospice Palliative Care Nurse Consultant, as they discuss managing death in the field.
October 2022: The Nurse’s Experience/Perspective on MAID
Join our guest host Lynda Meeks, NSMHPCN Education Facilitator, and her guest speaker, Julie Leighton-Phelps, Hospice Palliative Care Nurse Consultant, as they discuss the a nurses experience with, and perspective on, Medical Assistance in Dying.
September 2022: Polite people don't say De**h!
Join our guest host Laura Bates, NSMHPCN Education Facilitator, and her guest speaker, Jennifer Kerr, Grief and Bereavement Counsellor at Matthew’s House and Caregiver Consultant, as they discuss the general sense of taboo that surrounds the words death and dying. Despite the effort to normalize conversations about dying and death both in health care and the general public, it is still a topic that is surrounded by stigma and myth. Listen as Laura and Jennifer discuss how attitudes about dying and death have changed and share their experiences of having discussions about dying and death in their professional and personal lives.
August 2022: Access to Palliative Care for Homeless People: Complex Lives, Complex Care
Join our guest speaker Rachel Lapensee, NSMHPCN Clinical Nurse Manager, as she reviews the article by Anke J E de Veer, Barbara Stringer, Berno van Meijel, Renate Verkaik and Anneke L Francke.
June 2022: Healing the Hearts of Bereaved Parents
Join our guest speakers, Louise Brazier, Bereavement Services Coordinator, Hospice Orillia, and Stefanie Collins, Community Social Worker, Hospice Orillia, as they review the article Healing the Hearts of Bereaved Parents: Impact of Legacy Artwork on Grief in Peadiatric Oncology by Megan R. Schaefer, MS , Scott T. Wagoner, MA , Margaret E. Young, MS , Avi Madan-Swain, PhD , Michael Barnett, MD, MS and Wendy N. Gray, PhD.
May 2022: Palliative Care and Alzheimer's
Join our guest speakers, Inge de Bruijn, HPC Nurse Consultant, and Erika Rice, Coordinator of Online Learning and Knowledge Translation and Exchange at the Alzheimer Society of Ontario, as they discuss what Palliative Care looks like for those with Alzheimer’s.
April 2022: Factors Which Influence Hospital Doctor's ACP Adherence
Join our guest speaker, Julie Leighton-Phelps, Hospice Palliative Care Nurse Consultant, as she discusses the article on Changing Practices in the Use of Continuous Sedation at the End of Life: A Systematic Review of the Literature by Madelon Ti Heijlljes, MD, GhislaineJ.M.W van Thiel, PhD,Judith lt.C. Rieqjens, PhD et al.
March 2022: The Lived Experience of a NSMHPCN Nurse Consultant in Palliative Care
Join our guest speakers, HPC Nurse Consultants Charlene Hagerman, Kathlene Bartlett, Inge de Bruijn and Sue Martin, as well as our Clinical Nurse Manager Rachel Lapensee, as they discusses the lived experience as a North Simcoe Muskoka Hospice Palliative Care Network Nurse Consultant.
February 2022: Palliative Sedation
Join our guest speaker, Julie Leighton-Phelps, Hospice Palliative Care Nurse Consultant, as she discusses the article on Changing Practices in the Use of Continuous Sedation at the End of Life: A Systematic Review of the Literature by Madelon Ti Heijlljes, MD, GhislaineJ.M.W van Thiel, PhD,Judith lt.C. Rieqjens, PhD et al.
January 2022: Grief and Bereavement
Join our guest speakers, Nicole Johnstone, Mundell Funeral Home, and Susan McCoy, Bereavement Ontario Network, along with Louise Brazier, Bereavement Services Coordinator and Daniela Accomando, Visiting Hospice Coordinator and Social Worker, as we discuss Grief & Bereavement and how the global pandemic has affected how we cope.
December 2021: Heart Failure
Join our guest speakers, Cathy McKeown, Hospice Palliative Care Nurse Consultant, as she discusses the article by Caroline McGuinty, MD et al.
November 2021: Reframing Hope, One Wish at a Time with The Living Wish Foundation
Join our guest speaker, Nancy Good-Kennedy, RN, CHPCN, Nurse Consultant, as we discuss the Living Wish Foundation.
October 2021: Advance Care Planning for Individuals with Chronic Obstructive Pulmonary Disease
Join our guest speaker, Rachel Lapensee, RN, BScN, CHPCN, as she reviews the article ‘Advance Care Planning for Individuals with Chronic Obstructive Pulmonary Disease: A Scoping Review of the Literature’ by Elaine Meehan, Phd, BSc et al.
September 2021: Idiopathic Pulmonary Fibrosis
Join our guest speaker, Rachel Lapensee, RN, BScN, CHPCN, as she reviews the article ‘Idiopathic Pulmonary Fibrosis: A Review of Disease, Pharmacological, and Nonpharmacological Strategies With a Focus on Symptoms, Function, and Health-Related Quality of Life’ by Dr. Dmitry Rozenberg MD, Phd et al.